People who face this disease daily know how tough it can be. That's why ALSCaregivers.org offers free workshops created by ALS Caregivers for ALS Caregivers, sharing practical tips for handling the daily challenges of living with ALS.
Register today using the links below. We'll send a reminder to everyone who signs up before each workshop
Upcoming Workshops
Click "Register Now"
Wed Nov 11, 2026 6pm cst
Advances in ALS Research & Innovation with Dr Veronique Belzil by EVERYTHING ALS
Online
Wed Nov 18, 2026 2pm cst
Bridging Voice; Ensuring No Voice is Lost to ALS by ALS.Community
Online
Fri Dec 11, 2026 2pm cst
Understanding Local ALS Care Services by ALS.Community
Online (Zoom)
Fri Jan 15, 2027 Noon-1:30pm cst
Everyday Living With Confidence: Practical strategies for toileting, bathing and maintaining dignity and independence by ALSCaregivers
Online (Zoom)
Fri Feb 19, 2027 Noon-1:30pm cst
Just Diagnosed - Finding Your Path Forward: Navigating the first steps with knowledge, support and hope by ALSCaregivers
Online (Zoom)
Fri Mar 19, 2027 Noon-1:30pm cst
Keeping Life in Motion: Mobility with ALS Exploring tools and strategies to support movement, access and independence by ALSCaregivers
Online (Zoom)
Fri Apr 16, 2027 Noon-3:30pm cst
Breathe Easier, Live Supported: Breathing & Swallowing with ALS Understanding options, planning ahead, and building confidence in care by ALSCaregivers
On Site (Fenton, MO)
Fri May 21, 2027 Noon-1:30pm cst
Finding Your Voice: Navigating Bulbar-Onset ALS Discover strategies, resources, and support for speech, swallowing and daily life by ALSCaregivers
Online (Zoom)
Fri Jun 18, 2027 Noon-1:30pm cst
Living with Purpose: Joy, Connection, & Impact Finding meaning, celebrating what matters, and making a difference through every season of life by ALSCaregivers
Online (Zoom)
Fri Jul 16, 2027 Noon-1:30pm cst
Prepared & Empowered: Navigating ALS Emergencies Building a plan, recognizing urgent situations, and knowing how to respond by ALSCaregivers
Online (Zoom)
Fri Aug 20, 2027 Noon-3:30pm cst
Adapting with Confidence: Upper & Lower Body Support Practical ways to navigate weakness, conserve energy, and make everyday life more accessible by ALSCaregivers
On-Site (Fenton, MO)
Fri Oct 15, 2027 Noon-1:30pm cst
Every Voice Matters: Staying Connected with ALS Exploring communication tools that help people express themselves and stay connected by ALSCaregivers
Online (Zoom)
Fri Nov 19, 2027 Noon-1:30pm cst
The Caregiving Journey: What I Wish I Knew Real-world wisdom, shared experiences and support for the road ahead
Online (Zoom)
Caregiver Library
ALS caregivers have created e-books sharing tips for handling the daily challenges of living with ALS. These e-books are easy to read and include pictures, helpful links, how-to videos, and audio clips from caregivers about equipment and techniques. They are a helpful resource for anyone dealing with this disease. You can click on the books below to take a look.
If you are caring for someone recently diagnosed with ALS, this is intended for you. We are here to support you as you begin this journey.
Just Diagnosed
Learn about tools that can make bathing, personal care, and getting dressed simpler. Find helpful tips for getting in and out of the shower and making bathing easier.
Bathing
This guide offers tools to assess your breathing, ways to make breathing more comfortable, and practical tips for handling breathing problems.
Breathing
Many people with ALS first notice problems with speech or swallowing. This is known as bulbar onset. Here are some insights about bulbar onset ALS and tips for managing common symptoms.
Bulbar Onset
Insights on scooters, wheelchairs, wheelchair accessories and accessible vehicles. Tips on assisting with car transfers, navigating wheelchair obstacles and driving with ALS.
Getting Around
Insights on what to expect when receiving medicine through an IV and infusion options. Tips for infusing and bathing with PICC lines and ports.
Infusions
Insights on stretches and exercises that enable retention of functionality. Tips for addressing muscle spasms and cramps and a variety of therapy options.
Keep Your Body Moving
Insights on disability forms, legal documents, caregiver logs, and equipment logs. Tips for planning clinic visits, available support, and where to find resources on available ALS studies and trials.
Key Documents & Handy Resources
Find helpful advice on using assistive devices for walking, standing up from a chair if your legs are weak, and getting up from the floor. You’ll also get tips for getting out of cars and ways to manage leg swelling, cramps, and spasms.
Lower Body
Insights on participating in ALS Studies, becoming an ALS ambassador or assisting with advocacy efforts. Tips and forums for sharing your story and experiences helping others facing similar challenges.
Making A Difference
Insights on big and small changes that can make your home more functional for all stages of the disease progression.
Making Your Home Work For You
Insights on assessments associated with unclear thinking or inappropriate emotions and tips on handling these situations.
Not Acting Like Themselves
Insights on how to retain close connections with spouses/partners, children, relatives, co-workers and health care providers.
Relationships
Discover effective tools for managing voice weakness and enhancing communication. Access practical guidance on caregiver alerts, voice banking, and message banking.
Speaking
This document provides nutrition alternatives, strategies to manage excessive drooling, and practical tips to support eating and drinking during meals.
Swallowing
Insights on equipment and best practices to keep the caregiver mentally, physically, and emotionally healthy. Tips on leveraging others for assistance and making the most of together time.
Taking Care of the Caregiver
Here are some suggestions for equipment that can make using the toilet easier, along with tips to help with moving safely to and from the toilet.
Toileting
Insights on planning for and navigating accessible traveling with planes, trains and boats. Tips for road trips and accessible destination considerations.
Traveling
Find helpful tools for managing arm, hand, and neck weakness. Get practical advice on dressing, personal hygiene, eating and drinking, and using your phone or computer without your hands.
Upper Body
Quick Reference
If you are short on time, you can use the links below to jump straight to common topics in the book and workshop videos. You will also find a link to a sample Amazon lists with equipment that can help you tackle this challenge.
Breathing Diagnostics
Disabilty Forms
Do Random Acts Of Kindness
Fund Raising
Getting Started
Help / Support
Home Renovations: Assistance
Hospitalizations
Journey's End: Nearing
Journey's End
Knowlege Is Power
Log: For Key Contacts
Losing Your Voice
Making The Most Of Together Time
Not Acting Like Themselves
Post Funeral Considerations
Range of Motion: Therapy
Range of Motion: Workouts
Relationships: Co-Workers
Relationships: Importance
Share Your Story / Experience
Swallowing Diagnostics
The Right To Choose
Who We Are
